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Child born without bones saved by experimental drug therapy

6:08 PM, Apr 22, 2013   |    comments
  • Janelly Martinez-Amador, 6, who was born without bones, plays on the floor at her Nashville home. / Jae S. Lee / The Tennessean
  • Janet Amador pushes Janelly in a stroller while artist Dwayne Szot applies paint to a roller attached to the conveyance as they paint together during the sixth annual Very Special Arts Festival at Nashville's Harris-Hillman Special Education School, which Janelly attends. / Jae S. Lee / The Tennessean
  • Janelly smiles while waiting to be admitted for outpatient surgery. It has been four years since she entered the clinical trial that saved her life at Monroe Carell Jr. Children's Hospital. / Jae S. Lee / The Tennessean
  • Salvador Martinez, left, plays with his daughter Janelly Martinez-Amador, 6, in a holding room before she has a surgery at Monroe Carell Jr. Children's Hospital at Vanderbilt on Wednesday, April 10, 2013. / Jae S. Lee / The Tennessean
  • Janet Amador, Janelly's mother, is overcome with emotion as she shares the news of her daughter's successful surgery at Monroe Carell Jr. Children's Hospital at Vanderbilt. / Jae S. Lee / The Tennessean
  • Mom Janet Amador hugs children Axel, 13, and Jessica, 2, while dad Salvador Martinez reads at their home in Nashville. The children's 6-year-old sister, Janelly, was born with the most severe form of hypophosphatasia – a genetic disorder preventing skeletal mineralization that occurs in only one of every 100,000 infants. / Jae S. Lee / The Tennessean
  • Six-year-old Janelly Martinez-Amador breathes with the help of a tracheotomy tube and ventilator as she lies in a recovery room after undergoing outpatient surgery recently at Monroe Carell Jr. Children's Hospital at Vanderbilt. / Jae S. Lee / The Tennessean
  • Janet Amador prepares an injection of the enzyme treatment for her daughter. / Jae S. Lee / The Tennessean
    
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A child born with a severe metabolic disorder that kept her from forming bones now has a skeletal system after receiving an experimental drug at Vanderbilt children's hospital. Photos courtesy The Tennessean.

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